cystic fibrosis blogs

1. Cystic Fibrosis News Today

About Blog Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosis news and articles. Stay informed about approved therapies, new medications and developments to treat CF. Frequency 1 post / day Since Apr 2014 Blog
Facebook fans 22.6K ⋅ Twitter followers 4.3K ⋅ Instagram Followers 7.8K ⋅ Social Engagement 5


2. CF Roundtable A Newsletter for Adults with Cystic Fibrosis

About Blog The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF. Frequency 1 post / week Since Mar 2011 Blog
Facebook fans 2K ⋅ Twitter followers 806 ⋅ Social Engagement 136


3. Cystic Fibrosis community

About Blog A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care. Frequency 3 posts / year Blog
Facebook fans 239.4K ⋅ Twitter followers 29.8K ⋅ Social Engagement 24


4. The Frey Life

About Blog We are daily vloggers on Youtube sharing this crazy journey called life with all of you. Laugh with us. Cry with us. See the world with us. Get a glimpse of life with Cystic Fibrosis. Be encouraged as you watch our videos... we hope they make your smile and and bring joy to your day. Welcome to THE FREY LIFE! Frequency 1 post / day Since Mar 2014 Also in Blog
Facebook fans 112.1K ⋅ Twitter followers 7.8K ⋅ Social Engagement 167


5. Cystic Fibrosis Trust

About Blog The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Our mission is to create a world where being born with CF no longer carries a death sentence, when everyone living with the condition will be able to look forward to a long, healthy life. Frequency 3 videos / month Since Oct 2008 Blog
Facebook fans 88.5K ⋅ Twitter followers 27.2K ⋅ Social Engagement 5


6. Cystic Fibrosis Federation Australia

About Blog Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks, the effects and how to best live your life. Blog
Facebook fans 8.4K ⋅ Domain Authority 46


7. Cystic Fibrosis Canada

About Blog Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in life-saving CF research and care than any other non-governmental agency in Canada. Frequency 4 posts / month Since Apr 2016 Blog
Facebook fans 17.6K ⋅ Twitter followers 5.7K ⋅ Instagram Followers 4.7K ⋅ Social Engagement 12K ⋅ Domain Authority 53 ⋅ Alexa Rank 2.2M


8. Journal of Cystic Fibrosis

About Blog The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis. Frequency 2 posts / week Blog
Domain Authority 35 ⋅ Alexa Rank 2.2M


9. Reddit - Cystic Fibrosis

About Blog A community for people who suffer from, or know someone with, the debilitating illness known as Cystic Fibrosis. Frequency 6 posts / day Blog
Twitter followers 39.1K ⋅ Social Engagement 9 ⋅ Domain Authority 91 ⋅ Alexa Rank 18


10. Bennett Brinson Gamel: Fighting Cystic Fibrosis

About Blog Cystic fibrosis is a life-threatening genetic disease that causes mucus to build up and clog some of the organs in the body, particularly the lungs and pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that lead to lung damage. Frequency 1 post / month Since Jul 2008 Blog
Twitter followers 989 ⋅ Social Engagement 179 ⋅ Domain Authority 17 ⋅


11. Claire's Place Foundation

About Blog Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support. Frequency 1 post / week Since Jul 2011 Blog
Facebook fans 30.5K ⋅ Twitter followers 26.1K ⋅ Instagram Followers 74K ⋅ Domain Authority 49 ⋅ Alexa Rank 2.6M


12. Continent Chasers

About Blog Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the planet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams. Frequency 5 posts / year Blog
Facebook fans 1.9K ⋅ Twitter followers 1.9K ⋅ Instagram Followers 1.6K ⋅ Social Engagement 30 ⋅ Domain Authority 12 ⋅


13. Cystic Fibrosis New Zealand | Creating Better Tomorrows

About Blog Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have the condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy. Blog
Facebook fans 3.9K ⋅ Domain Authority 33 ⋅ Alexa Rank 7.7M


14. IV Solutions blogs

About Blog IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF medications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination. Since Dec 2015 Blog
Facebook fans 765 ⋅ Twitter followers 205 ⋅ Domain Authority 20 ⋅


15. With Every Breath: My Life with Cystic Fibrosis

About Blog Once you choose hope, anything's possible. it's also a good way for me to connect with others in the CF community. Others in my situation may find it comforting to see they aren't alone. Blog by jordan. Since Oct 2013 Blog
Domain Authority 6 ⋅


16. Stanley's Journey Get it off your chest CF

About Blog Stanley-Ray was diagnosed with cystic fibrosis at 20 days old, this facebook page is to keep people updated on his progress & to raise funds for CF trust. Frequency 2 posts / year Since Sep 2016 Blog
Facebook fans 821 ⋅ Twitter followers 405 ⋅ Instagram Followers 322 ⋅ Social Engagement 10 ⋅ Domain Authority 5 ⋅


17. Love to Breathe

About Blog Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change the world... Join my fight! Since Mar 2008 Blog
Facebook fans 8.9K ⋅ Twitter followers 1.7K ⋅ Instagram Followers 11.5K ⋅ Social Engagement 185 ⋅ Domain Authority 14 ⋅


18. Behind the Smile of a Cystic

About Blog My personal spin with Cystic Fibrosis tips, tricks, positive outlooks. All while making my dreams come true! 'Always Smile. I want to encourage everyone with CF young or old to reach for you dreams, no matter how big or small they can be. As long as you have the right attitude in life, your disease will not bring you down! Since Jan 2012 Blog
Twitter followers 211 ⋅ Domain Authority 6 ⋅


19. Cystic Fibrosis Kids

About Blog CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas. Frequency 2 posts / year Blog
Facebook fans 1.4K ⋅ Instagram Followers 138 ⋅ Domain Authority 29 ⋅


20. More Than DNA DNA doesn't define our family

About Blog Spreading Awareness about Cystic Fibrosis through sharing our experiences in life! AND finding a CURE for CF! Frequency 1 post / year Blog
Facebook fans 1K ⋅ Twitter followers 2.4K ⋅ Social Engagement 36 ⋅ Domain Authority 5 ⋅


21. Past the Point of No Return

About Blog A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung transplant and finally recieved the gift of life 10.10.11! All views my own. Frequency 18 posts / year Since May 2005 Blog
Twitter followers 3.9K ⋅ Social Engagement 14 ⋅ Domain Authority 20 ⋅


22. 66 roses

About Blog Blog by Erin Moore, I'm just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thoughts. This blog, 66 Roses, is dedicated to finding the cure. Since May 2010 Blog
Facebook fans 391 ⋅ Twitter followers 2.3K ⋅ Domain Authority 21 ⋅


23. Cody Dieruf Benefit Foundation | Life with Cystic Fibrosis

About Blog The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting communities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences. Frequency 1 post / week Blog
Facebook fans 2.1K ⋅ Twitter followers 7 ⋅ Social Engagement 3 ⋅ Domain Authority 22 ⋅


24. Amy Labonte | Now is the Winter of Our Discontent

About Blog A mom, her CF warrior, and our journey through life, love and hardships. Striving for a cure, trying to raise awareness. Since Oct 2012 Blog
Facebook fans 558 ⋅ Twitter followers 752 ⋅ Social Engagement 14 ⋅ Domain Authority 3 ⋅


25. The Sprog's Life

About Blog Blog by George. I started this blog back in January 2012. At first i didnt want this to be a public blog, just some where i could write my thoughts and feelings, sort of a diary and journey through my time getting on and waiting on the transplant list. Since Jan 2012 Blog
Twitter followers 1K ⋅ Domain Authority 11 ⋅